This week brings yet another unexpected twist,
but this time hopefully it’s a good one!
The thoracic surgeon looked through all my imaging
going back YEARS, and discovered that Nodsferatu has actually been there since
at least 2021! Back then it was WAY too small to notice, but once you know what
to look for you can see a tiny bump on the scans. But the really exciting part
is that he looked at the chest MRI taken when I had an abscess back in
December, and he thought that Nodsferatu looked like a fluid collection and NOT
a tumor! If that’s true, that would mean that Nodsferatu is likely just yet another
Pseudomonas abscess, and NOT cancer! In which case instead of putting me through
a rigorous surgery and opening my chest to remove it, he MIGHT be able to just drain
it and treat the infection with IV antibiotics, which would be MUCH less
invasive!
This was a very exciting development, but it definitely
required more imaging before coming to any conclusions. He ordered a chest MRI,
and remarkably I was able to get it done that very same day. And if I’m reading
this MRI report correctly, Nodsferatu looks like an abscess!!!
Meanwhile my transplant team was already
working on getting me setup with home infusion to treat the Pseudomonas
infection that showed up in the biopsy. Yesterday I had a midline placed, and
today I started IV antibiotics. Unfortunately the antibiotic of choice is Fetroja
(aka cefiderocol), which requires 3 hour infusions 3 times a day. To make
matters worse, each dose is split into 2 bags, so it has to be changed halfway through.
It’s far from our first rodeo with this particular antibiotic, so Katherine and
I already know we won’t be getting much sleep for the next few weeks. And
abscess treatment usually isn’t a quick process, since there isn’t any blood
flow inside an abscess and it takes a while for the antibiotic to penetrate it.
We’re not exactly looking forward to getting back on the no-sleep train.
HOWEVER, I think I mentioned in a previous
update that our bar has been lowered DRAMATICALLY since this whole nodule saga
began. A month ago if you had told me that I have YET ANOTHER Pseudomonas
abscess that needs to be treated, I probably would have lost my damn mind. But
NOW, I will be THRILLED to be told that I only have an abscess and not freaking
cancer! It’s amazing how quickly your perspective can change!
Even though it’s the much better option by far,
Pseudomonas is still one stubborn bastard and is ABSOLUTELY my arch nemesis. So
to recognize this, Katherine somehow managed to find the absolute best plushy
in existence! Apparently the site that provided the cancer plushy also had
another incredibly topical item in their shop. I was SO surprised and laughed
SO HARD when she gave it to me! And now whenever Pseudomonas ticks me off, I
can just punch it in the face!


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