Yay steroids!
After a couple weeks on a lot of Prednisone, I’m feeling much better and my numbers are back to baseline. Since I’ve been on a higher dose for longer than usual, my doctor wants me to taper off very slowly to reduce the chance of reacting negatively. So I’ll still be on Prednisone for a few more weeks, and hopefully will continue maintaining my lung function once it’s stopped. Prednisone is notorious for miserable side effects, but it just seems to make me normal: Instead of being hyper, I’m just less fatigued. Instead of being ravenous, I just have an almost normal appetite for a change. I think Prednisone kinda works for me! Too bad long term steroid use isn’t actually good for you.
They finally removed the PICC line, which was a big relief! We discussed possibly getting a port placed, but first I need to have a consult with hematology to make sure they think it’s safe, given my clot history. I also still need to find a pulmonary rehab, which admittedly I haven’t put much effort into. Though I am GREATLY appreciating the fact that I can mostly walk and manage day to day activities again, I’m still slow and easily winded, and can probably be doing at least somewhat better. Hopefully pulmonary rehab can help me bump things up to the next level.
In the spirit of feeling better, I suddenly decided on Sunday that I want to see the full solar eclipse. Fortunately I come by my crazy honestly, and with minimal effort my mom was persuaded to join me. We somehow managed to score a hotel not too far from the zone of totality, so on Sunday my mom and I will hop in the car and drive to Tennessee for a hastily planned road trip. We can’t remember the last time we took a vacation together, so it should be a fun adventure! Wish us luck!
After a couple weeks on a lot of Prednisone, I’m feeling much better and my numbers are back to baseline. Since I’ve been on a higher dose for longer than usual, my doctor wants me to taper off very slowly to reduce the chance of reacting negatively. So I’ll still be on Prednisone for a few more weeks, and hopefully will continue maintaining my lung function once it’s stopped. Prednisone is notorious for miserable side effects, but it just seems to make me normal: Instead of being hyper, I’m just less fatigued. Instead of being ravenous, I just have an almost normal appetite for a change. I think Prednisone kinda works for me! Too bad long term steroid use isn’t actually good for you.
They finally removed the PICC line, which was a big relief! We discussed possibly getting a port placed, but first I need to have a consult with hematology to make sure they think it’s safe, given my clot history. I also still need to find a pulmonary rehab, which admittedly I haven’t put much effort into. Though I am GREATLY appreciating the fact that I can mostly walk and manage day to day activities again, I’m still slow and easily winded, and can probably be doing at least somewhat better. Hopefully pulmonary rehab can help me bump things up to the next level.
In the spirit of feeling better, I suddenly decided on Sunday that I want to see the full solar eclipse. Fortunately I come by my crazy honestly, and with minimal effort my mom was persuaded to join me. We somehow managed to score a hotel not too far from the zone of totality, so on Sunday my mom and I will hop in the car and drive to Tennessee for a hastily planned road trip. We can’t remember the last time we took a vacation together, so it should be a fun adventure! Wish us luck!
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