The good news is, I’m not in the hospital. The bad news is, the only reason I’m not in the hospital is that we’re not convinced it’ll do much good. The last few times I’ve been on IV antibiotics, I couldn’t maintain the improvement and tanked again a few weeks later. A few weeks of improvement isn’t really worth all the effort of being hospitalized and going through 3 weeks of IV antibiotics. On the other hand, my numbers have continued to slide and I’m feeling pretty awful now, so maybe it is time for a “tune up.” For now we started me on an oral antibiotic and a nebulized steroid, and I’ll go back for a follow up in 3 weeks.
Daily life is pretty difficult right now, since I’m very tired and get out of breath with just about any exertion. The funny thing is, I keep hearing from people that I LOOK great, so I guess at least I have that going for me. It’s actually a good lesson in not judging based on appearances, since we can’t necessarily tell what’s really going on beneath the surface.
I started doing some exercise at pulmonary rehab, and learned that I’m embarrassingly weak. I did about 10 minutes on the lowest setting on a seated elliptical, which was ok, but then I did 4 minutes on an arm pedal exerciser and discovered that my arms get tired very easily. I also had a PT assessment and she identified some weaknesses in my legs. Next week I will start doing exercises with the respiratory therapist AND the physical therapist at every session, so that should be exhausting. But hopefully it will be helpful!
Daily life is pretty difficult right now, since I’m very tired and get out of breath with just about any exertion. The funny thing is, I keep hearing from people that I LOOK great, so I guess at least I have that going for me. It’s actually a good lesson in not judging based on appearances, since we can’t necessarily tell what’s really going on beneath the surface.
I started doing some exercise at pulmonary rehab, and learned that I’m embarrassingly weak. I did about 10 minutes on the lowest setting on a seated elliptical, which was ok, but then I did 4 minutes on an arm pedal exerciser and discovered that my arms get tired very easily. I also had a PT assessment and she identified some weaknesses in my legs. Next week I will start doing exercises with the respiratory therapist AND the physical therapist at every session, so that should be exhausting. But hopefully it will be helpful!
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