It’s
been a medically busy month!
I
started things off with a CT scan. Almost 2 months ago I noticed a lump on one
of my transplant incisions near where I had an abscess a few years ago. It
wasn’t visible and was barely noticeable, but I was obviously concerned due to
my history. The CT scan fortunately didn’t show any signs of abscess or
infection, and my doctor reassured me that it was just a suture granuloma,
which happens when the immune system reacts to a foreign object (in this case,
a leftover suture from my transplant) by trying to form a barrier around it and
wall it off from the rest of the body. My doctor gave me the option to meet
with a plastic surgeon and have it surgically removed, but I decided not to
pursue that unless it became more of a bother. Well, barely a week later it
started bothering. Not only had it grown, but it had become slightly red and
sore, which are both bad signs. I’m now scheduled for an MRI in mid-December,
and will be having a plastic surgery consult afterwards. Let’s just hope Lump
can keep it together until then and I don’t end up rushing to the ER with more
significant symptoms the way I did the last time I dealt with something like
this.
A
week after my CT scan I got to have a colonoscopy. Not only have I reached
colonoscopy age, but both CF and transplant put me at higher risk for colorectal
cancer. Unfortunately for me, the last time I had a colonoscopy a few years ago
the prep didn’t fully clear me thanks to my stupid stubborn CF gut. So this
time I got to do the extended prep, which meant 2 days straight of clear liquid
diet plus a ridiculous amount of laxatives. And guess what? After all that, I
wasn’t clear AGAIN! What they were able to see looked fine, but instead of
waiting 5 years for my next one, I have to do it again in 2 years. And who
knows what kind of godawful prep I’ll have to go through next time! I’m already
dreading it!
The
week after that I had my last scheduled appointment with Dr. Courtwright, my
transplant doctor, before he moves across the country. He’s not actually
leaving until December 13th though, so if anything goes wrong before
then he’ll still be my doctor. And with the current Lump situation, I wouldn’t
be surprised if I see him again before he leaves!
Last
week I had my annual appointment with my ENT. Though a recent CT scan showed
that my sinuses are blocked, he actually didn’t think that I would get much
benefit from sinus surgery. One the one hand I’m glad to not have to go through
an unpleasant surgery, but I’m also disappointed that there’s basically no
chance of ever getting my sense of smell back. It disappeared completely again
several months ago, and though there was no guarantee that I would get it back
even with surgery, I had some hope because I unexpectedly got it back after my
last sinus surgery. But no surgery unfortunately means no chance of regaining
my sense of smell. I can definitely live without it, but I do miss it
sometimes. My ENT also looked at the ear that has been giving me problems and
saw a lot of drainage from the ear tube. He gave me antibiotic and steroid ear
drops, and sent off a sample to see what infection I have brewing in there. And
OF COURSE, as always, it’s my nemesis pseudomonas! My ENT is currently
consulting with both my CF team and with colleagues who specialize in ears to
come up with a treatment plan. I actually was pleasantly surprised that he
dealt with my ear at all, as previously he referred me to another ENT since he
specializes in sinuses and not ears. Hopefully he’ll be able to come up with a
plan that finally deals with this ear issue once and for all!
And
that brings us to today, and my consult with an oral surgeon. A couple months
ago I went to the dentist for the first time in years. Between transplant and
Covid, dental appointments kind of fell by the wayside, but fortunately I have
good teeth so I could mostly get away with it. For years I said that G-d balanced
things out for me, and gave me good eyes and good teeth to make up for all my
internal organs being trash. I never needed glasses, or braces, or any other
significant dental work. In fact, I never even had so much as a cavity! Well
apparently getting new lungs voided the contract, because earlier this year I
finally got glasses, and a couple months ago they found the first cavity of my
entire life. Unfortunately, it’s close to the nerve, so they have to either
extract the tooth or do a root canal. On the plus side, it’s in a wisdom tooth
which is fully in, so extracting it isn’t a big deal. My dentist wasn’t
comfortable with the angle of the tooth, however, so she referred me to an oral
surgeon. The oral surgeon said it should be easy to extract with just local
anesthetic, so I have an extraction appointment scheduled in 2 weeks. Here’s
hoping it goes smoothly!
Overall
my medical needs have been keeping me pretty busy lately, with still more to
come! Hopefully I can get these various issues taken care of quickly and things
will settle down soon!
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