And the verdict is… no more surgery!!!
I saw the plastic surgeon last week, and he
said my wound is all healed up and doesn’t need any further intervention! That
was a HUGE relief!! I also had a transplant appointment last week, and my lung function
was at 99%! Which means that once again I have weathered a respiratory virus
without triggering any rejection. Whew! I’m SO glad to finally put this round
of medical drama behind me!!
That doesn’t mean I have nothing left on my
plate however. Now I need to catch up on stuff that got pushed off while I was
dealing with more pressing issues. A big one is that I still need to get a
tooth extracted, which my transplant doctor wants me to prioritize due to the
risk of infection. I also have a follow up hearing test and ENT appointment to
see how I’ve recovered from the pseudomonas infection in my ear. In a couple
months I need to get an ultrasound to make sure the DVT in my arm has resolved,
and I might need to follow up with hematology since this is the second time I’ve
had a PICC induced blood clot. Then there’s the standard stuff like getting a
mammogram and following up with my diabetes doctor. Never a dull moment!
I also now have a primary care doctor for the
first time in decades! A few weeks ago I randomly started having pain in my
shoulder. My transplant team sent me for an x-ray to make sure my bones were
ok, since they’ve been weakened by years of steroid use. Thankfully nothing was
broken, so they told me to follow up with a primary care doctor, since joint
issues are really outside their area of expertise. So I got to overwhelm a
primary care doctor with my insane medical history, which was actually kind of
amusing. She was so overwhelmed, in fact, that she scheduled a second, longer
appointment to finish going through everything. In the meantime, I have
shoulder exercises to try before looking into PT. And I also have an orthopaedic
appointment to deal with some on and off hip and foot pain that has been an
issue for years but I never bothered dealing with. Look at me having normal
people problems!
Finding out that I don’t need further surgery
and that my lungs are doing well was GREAT news after over 2 months of medical
drama. Hopefully I can stick with my baseline level of medical involvement and
avoid any more urgent issues for a good long while!
The experiences, thoughts, and ramblings of an adult with Cystic Fibrosis.
Tuesday, February 25, 2025
Monday, February 3, 2025
Not the best
Well, it wasn’t the WORST doctor’s appointment,
but it also wasn’t the best.
Last week I saw the plastic surgeon who is in
charge of my wound. Though the wound looks like it’s closing well on the
outside, there’s still an open pocket under the surface that hasn’t closed. The
plastic surgeon said it’s currently unclear whether or not that pocket will
close on its own. It’s possible that my body has formed a sort of film inside
the cavity that will prevent it from closing entirely. We’re giving it 3 more
weeks, and if it hasn’t made significant progress by then, it will have to be
closed surgically. Unfortunately that would mean putting me under general
anesthesia, re-opening the outer incision, excising the film from inside the cavity,
and putting in a drain before sewing everything back up. I’m REALLY hoping
things look much better in 3 weeks, because I do NOT want to have to go through
surgery and a lengthy healing process all over again. There’s no way to tell
what will happen though, so all I can do now is wait and see.
I was pretty unhappy after that appointment. I
had no idea this was coming, since everything looks like it’s healing great
from the outside. I feel like the last 2 months have just been one medical issue
after the next, with no end in sight. And I’m REALLY upset at the thought of
having to go through ANOTHER painful surgery and recovery. I’m trying to be
hopeful that maybe things will improve over the next few weeks, but it’s hard
when it feels like every time things start looking up I end up getting punched
back down again.
2024 ended really poorly, and so far 2025 hasn’t
been going much better. Honestly, just typing all this out kinda makes me want
to scream! Let’s hope things turn around soon so I can finally move on from
this round of medical shenanigans.
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