Surgery day is finally here!
They told me to arrive at 11am, but I’m sure
they’ll already be behind schedule by then, so I don’t know what time surgery
will actually happen. I had to stop eating at midnight, so here’s hoping I won’t
have TOO long to get hangry. My bag is all packed and I’m definitely ready to
get this show on the road.
I’m also definitely anxious. Though it
obviously doesn’t compare to a freaking double lung transplant, this is still
the most invasive procedure I’ve had since then. Aside from the risk of general
surgical complications, I have some issues specific to this surgery that I’m
stressing over. One is the question of whether or not they’ll be able to find
and remove the leftover suture that we assume is hiding in there and harboring
these infections. If I wake up from surgery to hear that no suture was removed,
I will be VERY upset, because we’re all fairly certain that this cycle of
infection will continue as long as it’s in there. My other big worry is whether
or not the infection is in my bone. If it is, they’ll have to remove a piece of
my rib, and my surgeon let me know that due to the location afterwards my
shoulder blade could briefly get stuck in the gap sometimes. It doesn’t sound
like it would be a huge problem, but it does sound uncomfortable, and I’d
really rather not deal with it.
My last big worry is wondering how painful the
recovery is going to be. It’s going to be a decent sized incision, and they
have to pull my ribs apart and get all the way into my chest cavity. I had a
lot of pain after the biopsy, and during that they just stuck a big needle in
it, so I imagine this will be worse. I’ll also have large chest tubes immediately
afterwards, and while I don’t really remember what it was like having them
after transplant, I do know I was very relieved to get them out. The whole
thing just sounds incredibly unpleasant, and I’m honestly kind of dreading it.
I am VERY glad that I had a week off the antibiotics
before diving into this. I don’t know that I got much more sleep because my
sleep schedule is pretty much a raging dumpster fire, but not being tethered to
an IV pole 9+ hours a day definitely reduced my stress level. I feel a little
more mentally prepared to cope with recovering from surgery and doing several
more weeks of IV antibiotics now.
I have no clue what recovery is going to look
like, so if I’m still not up for typing anything by Friday, Katherine will post
an update. I will gratefully accept all prayers and positive vibes, with a
specific focus on them finding and removing the suture and not needing to
remove bone. My full Hebrew name is Keren Eliana bas Sarah. Thank you!
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