Well that was a long, boring weekend.
I found out on Friday that Lump 3 actually
appears to be Lump Jr, and is likely an offshoot of one of my original lumps.
They’re pretty sure the source is some sort of mycobacterium, but they need to
biopsy everything to know for certain. Unfortunately Lump Jr is deeper than the
initial, more superficial lumps, so now we need to consult with plastic
surgery. And of course they had already peaced out for the holiday weekend by
Friday.
I actually had the option of going home on
Friday and pursuing this as an outpatient, but we had some concerns. For one
thing, if anything went wrong I’d be back in the ER, and I already went to the
ER twice last week. Aside from not wanting to spend hours waiting again, I definitely
didn’t want yet anther exposure to the crowded, germ ridden ER waiting room. Also,
being inpatient makes my case a higher priority and gets things done faster
than doing it outpatient. And finally, Covid cases are ramping up and hospital
beds are in short supply. My doctor was worried that they’d have trouble getting
me in if I needed to come back – or worse, that outpatient procedures might
start getting canceled.
So I made the difficult decision to stay here
and just twiddle my thumbs all. Weekend. Long. I did petition to NOT be woken
up for vital signs at 4am, and not to have labwork at 5am EVERY morning, and to
get my IV out and preserve my precious veins since I’m not getting any
infusions yet. And they actually agreed! Spending extra days in the hospital
was annoying, but thankfully not too painful.
Today I should be meeting with plastic surgery
to figure out when they’ll open me up, clean out these lumps, and find out what’s
causing them. Depending on how that goes, follow up treatment could be super
easy or REALLY hard. Best case scenario they can easily clean everything out
with surgery and I don’t need any further treatment. Second best case scenario,
it’s an easy infection that can be treated with oral antibiotics. More
difficult scenario is a more difficult infection that requires a few months of
IV antibiotics. And the worst case scenario is a complicated infection that
could require a full year of IV antibiotics.
I’m obviously hoping for option 1 or 2, but I
think 3 is most likely because that’s an infection I used to have in my lungs
that could have escaped into my chest during transplant. But we really have no
clue until they do surgery and biopsy everything. Hopefully now that the
holiday weekend is finally over we can get the ball rolling and get things
taken care of SOON!
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