I haven’t written because it kinda felt like
every day was the same. The pain is improving, but I still have stitches and I’m
still uncomfortable and I’ve still been on IV antibiotics. The one thing that
changed is last week I got my drain out. It hurt but at least it was quick, and
that’s one less annoying thing sticking out of my body.
But then! Today I saw my transplant doctor. He’s
pleased with my recovery and said that the samples they took during surgery
actually didn’t grow any pseudomonas, which is a good sign that hopefully the
Amikacin will be able to fully eradicate the infection. And then he gave me the
best news I’ve heard in a LONG time. He said that the Covid rate in my area is
currently low enough that I can finally loosen up my lockdown and go back to
regular post-transplant precautions! For the last 2 years my socializing has
been very limited and almost exclusively outdoors. Sharing meals has been extremely
rare as any unmasked socializing had to be outside at a social distance. But
now! For the first time in 2 years, as long as everyone (excluding young
children) is vaccinated, I can finally be unmasked indoors and share a meal
together! With the caveats that I still can’t be around crowds, or anyone showing
any symptoms of anything, or people who have recently been in a crowded place
with a high risk of exposure to illness. And of course I’ll still wear a mask
in public. But those are basically the restrictions I followed post-transplant
anyway, since for me ANY infection has the potential to cause serious problems.
Being able to finally step inside someone’s house unmasked is a HUGE
improvement!
It’s kind of surreal, and I’m actually kind of
anxious about it! I’ve worked so hard to stay safe and somehow managed not to
catch Covid this whole time, so it’s very strange and a little scary to think
about loosening up on Covid protections. At the same time, I’ve been pretty
depressed lately, and I think a lot of it has to do with Covid. It feels like
Covid sucked all the fun parts out of life and all I had left was endless
medical complications. I wasn’t happy even before surgery, and having a painful
procedure and lengthy recovery thrown on top was just too much. Finding out
that I can start seeing friends again finally added a little light back into my
life, and hopefully will help pull me out of the depressive funk I’ve been slogging
through.
Today I finished my last dose of Amikacin. I’m
keeping the PICC line until Monday to get my annual infusion of Reclast to
treat osteopenia, and then hopefully after nearly 3 months I’ll finally get that
out. Next Wednesday I’ll get my stiches out and will hopefully be more
comfortable. And then the following day is Purim! Hopefully this will be the
end of medical drama and the beginning of more fun holidays and celebrations
with family and friends!!
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